Monday, November 23, 2009

A social experiment......

A rather larger percentage of my caseload is focused around issues related to adult abuse and neglect. If i'm not directly investigating reports of adult abuse and neglect, I am responding to and collectively grappling with questions and concerns presented by clients, families, and colleagues alike around vulnerability, capability and the intersection of these two concepts.

Over the next several months, the blog will be exploring the complex and challenging issues that arise from working in the area of adult abuse and neglect. For me, some of these challenges include understanding vulnerability in a broader, socially determined context; grappling with what it means to be "least intrusive" in an area of practice that has 'outsiders'(like myself) justified or not, making determinations about someone's capability - necessarily threatening their autonomy, self-determination. Could it be anymore 'intrusive'? In the rush to fix, save and cure - one of the most challenging aspects of this work, is finding ways to enter into these spaces - creating opportunities for full, even conflicting narratives to emerge, taking time to listen and understand multiple perspectives, holding sacred these voices and co-creating meaningful and effective responses that mitigate risk and vulnerability and preserve dignity.

So here's the experiment part: these are some of the challenges that I am faced with on a daily basis. My hope is that as I grapple with these questions in this forum, that readers and followers of the blog post their own challenges and responses - furthering the dialogue, sharing knowledge, expertise and experience and deepening the opportunities for learning and connection.

Thursday, November 5, 2009

Embodied Experience

"What happens when my body breaks down happens not just to that body but also to my life, which is lived in that body. When the body breaks down, so does the life. Even when medicine can fix the body, that doesn't always put the life back together again."
Arthur Frank
In health care, the primary focus of care is to diagnose and treat disease, ameliorate pain and suffering, and to champion 'recovery' as the ideal ending of illness. This is all really good and necessary stuff - but is it all there is? I don't think so. The medical narrative that dominates and drives clinical decision making around patient care is limited. It reduces a life to the biological/physiological functioning of body parts - something which can be measured, controlled and fixed if there is a problem. It is a storyline that focuses on the parts that have broken down, not about the whole, which is living the breakdown.
It is the 'whole' that is often considered last, if at all, in the busy world of managed care. To recognize the 'whole' takes more time. Understanding a patient's embodied experience of their health and illness requires a different kind of dialogue and a different level of engagment. It requires us to step into unfamiliar space and allow a rich and nuanced narrative to emerge that gives voice to an experience medicine cannot describe.